Fine, But Not Fine
Hosted by Kelly Paul, who has lived with Mycosis Fungoides (a rare form of Cutaneous T-Cell Lymphoma) since 2015, this podcast dives into the real-life struggles of managing an incurable condition while still trying to live a full, meaningful life.
Fine, But Not Fine is a podcast for anyone navigating the messy, frustrating, and often invisible challenges of rare diseases, chronic illness, and the healthcare system.
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Coping With “You Should try This” Advice – Ep. 8
Ever wondered how to deal with misguided advice and intrusive questions from well-meaning people when dealing with a serious or chronic illness? In this episode, I outline strategies for rejecting bad advice and setting boundaries while maintaining kindness.
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Prior Authorization: The Health Insurer Bureaucracy Blocking Your Care – Ep. 7
In this podcast episode, I talk about Prior Authorization, what it is, how it works, how insurers use it, and why it is a major hurdle to medical care for rare and chronic disease.
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My Experience with Narrowband UVB (NBUVB) Light Therapy – Ep. 6
I’m sharing my journey with Narrowband UVB (NBUVB) light therapy—how I started, how I adapted, and how I made it work for me.
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Rare Disease and Body Image – Ep. 5
In this episode, I explore the relationship between chronic illness, rare disease and body image, particularly how living in a body that doesn’t look or feel the way one wants can impact self-perception.
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