Life
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One Year Anniversary of Fine, But Not Fine – Ep. 27
One year into Fine, But Not Fine, I reflect on why I started this podcast, what it’s taught me about living with chronic illness, and the frustration of navigating healthcare and insurance. This episode explores advocacy, honesty, and the reality that life keeps on living—even when nothing feels resolved.
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Redefining Holiday Joy with a Rare Disease – Ep. 24
The holidays don’t have to be perfect to be joyful, especially when you’re living with a rare disease or chronic illness. In this episode, I share how I’ve learned to […]
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Rare Disease Fatigue is Real – Ep. 23
Rare disease fatigue is more than tiredness. I share its triggers, coping strategies, and why burnout is a signal to rest, not failure
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Traveling With a Rare Disease – Episode 21
Kelly Paul shares tips for traveling with Mycosis Fungoides—managing refrigerated meds, TSA rules, and planning for stress-free trips.
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Why Volunteering When You Have A Chronic Disease Matters – Ep. 20
Volunteering reminds Kelly Paul she’s more than her illness. Hear how giving back builds confidence, value, and balance with rare disease.
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Chronic Illness: Missing the Little Things – Ep. 14
In this episode, I'm not talking about insurance battles or medication side effects. I'm talking about something much smaller—a bath. Not a metaphorical bath. A real one. And how something that simple, that ordinary, can feel like everything when you're living with a rare disease. Sometimes, it's not the big victories that keep you going. It's the tiny, quiet moments you didn't realize you missed.
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Surviving the Mulligrubs: When You’re Just…Meh -Ep. 13
Ever feel off but can’t explain why? That weird, aimless funk has a name—the mulligrubs. In this episode, I break down why they hit, how to cope, and why sometimes the best move is mac and cheese and zero guilt.
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Fighter, Survivor, Warrior: Rethinking Illness Language – Ep. 12
Rethink the language of illness. This episode explores why words like "warrior" or "fighter" don't always fit life with a chronic or rare disease.
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Advice I’d Give My Newly Diagnosed Self – Eps. 10
This podcast episode is a letter to the version of me who had just been diagnosed. She was scared, overwhelmed, Googling way too much, and had no idea what the next year—let alone the rest of her life— was going to be like. Whether you’renewly diagnosed yourself or supporting someone who is, I hope this gives you some grounding and comfort. Because if I could go back, this is what I’d say.
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Managing Medications: It’s Like a Second Job – Eps. 9
I had no idea how complex medication management was until I had a chronic and rare disease. In this episode, I talk about medication management: keeping track of doses, dealing with pharmacies, ensuring you have the right supplies, and the craziness of the side effects lists.