Disease
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World Lymphoma Day Belongs to the Rare Ones Too – Ep. 38
Transcript Today is September 15th, World Lymphoma Day. At least it is if you’re listening to this podcast on the actual day it drops. And really, roughly about 80,000 people […]
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Why Mycosis Fungoides Takes Years to Diagnose: What I’ve Learned – Ep. 36
Mycosis fungoides typically takes years to diagnose. Mine took four months. What actually made the difference, and why it isn't something I can recommend.
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The Mycosis Fungoides Rule Out – Ep. 35
How do you know if a new spot is mycosis fungoides? My eyelid biopsy, the 7-day pathology wait, and what happens next with cutaneous T-cell lymphoma.
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The First Time Cancer Interrupted My Job – Ep. 26
A candid episode about the day cancer treatment and work collided. No advice, no silver lining—just an honest reflection on capacity, fear, and the invisible stakes of chronic illness.
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Rare Disease Fatigue is Real – Ep. 23
Rare disease fatigue is more than tiredness. I share its triggers, coping strategies, and why burnout is a signal to rest, not failure
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What Is Mycosis Fungoides? – Ep. 2
Mycosis Fungoides—it sounds rare because it is. In this episode, I break down what this disease actually is, how it affects the body, and what it’s like to live with a cancer most people have never heard of.