Fine, But Not Fine
Hosted by Kelly Paul, who has lived with Mycosis Fungoides (a rare form of Cutaneous T-Cell Lymphoma) since 2015, this podcast dives into the real-life struggles of managing an incurable condition while still trying to live a full, meaningful life.
Fine, But Not Fine is a podcast for anyone navigating the messy, frustrating, and often invisible challenges of rare diseases, chronic illness, and the healthcare system.
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Going to DC for Rare Disease Week, Ep. 28
Before heading to DC for Rare Disease Week on Capitol Hill, I share what it means to prepare as a first-time rare disease advocate—why insurance denials matter, what the Protect Rare Act aims to change, and how patients can engage in advocacy at their own pace.
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One Year Anniversary of Fine, But Not Fine
One year into Fine, But Not Fine, I reflect on why I started this podcast, what it’s taught me about living with chronic illness, and the frustration of navigating healthcare and insurance. This episode explores advocacy, honesty, and the reality that life keeps on living—even when nothing feels resolved.
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The First Time Cancer Interrupted My Job – Ep. 26
A candid episode about the day cancer treatment and work collided. No advice, no silver lining—just an honest reflection on capacity, fear, and the invisible stakes of chronic illness.
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Managing Multiple Doctors – Ep. 25
Managing multiple doctors with a rare disease or chronic illness is complicated, confusing, and honestly, exhausting. In this episode, I talk about what it’s really like to juggle doctors who don’t talk to each other — from conflicting advice and duplicate lab tests to the emotional toll of telling your story over and over again.…
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