Fine, But Not Fine
Hosted by Kelly Paul, who has lived with Mycosis Fungoides (a rare form of Cutaneous T-Cell Lymphoma) since 2015, this podcast dives into the real-life struggles of managing an incurable condition while still trying to live a full, meaningful life.
Fine, But Not Fine is a podcast for anyone navigating the messy, frustrating, and often invisible challenges of rare diseases, chronic illness, and the healthcare system.
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Redefining Holiday Joy with a Rare Disease – Ep. 24
The holidays don’t have to be perfect to be joyful, especially when you’re living with a rare disease or chronic illness. In this episode, I share how I’ve learned to let go of stress, overspending, and obligation — from going out for Thanksgiving dinner to skipping holiday travel — and focus instead on peace, connection,…
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Rare Disease Fatigue is Real – Ep. 23
Rare disease fatigue is more than tiredness. I share its triggers, coping strategies, and why burnout is a signal to rest, not failure
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Changing Jobs When You Have a Chronic Illness – Ep. 22
Changing jobs with a chronic illness? I share tips on navigating insurance, planning ahead, and finding support through tough transitions.
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Traveling With a Rare Disease – Episode 21
Kelly Paul shares tips for traveling with Mycosis Fungoides—managing refrigerated meds, TSA rules, and planning for stress-free trips.
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