Fine, But Not Fine
Hosted by Kelly Paul, who has lived with Mycosis Fungoides (a rare form of Cutaneous T-Cell Lymphoma) since 2015, this podcast dives into the real-life struggles of managing an incurable condition while still trying to live a full, meaningful life.
Fine, But Not Fine is a podcast for anyone navigating the messy, frustrating, and often invisible challenges of rare diseases, chronic illness, and the healthcare system.
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Why Volunteering When You Have A Chronic Disease Matters – Ep. 20
Volunteering reminds Kelly Paul she’s more than her illness. Hear how giving back builds confidence, value, and balance with rare disease.
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It Wasn’t Scanxiety — It Was Fear. Ep. -19
A PET/CT scan, soaring liver numbers, and fear beyond scanxiety — my story of facing the possibility that my cancer (Mycosis Fungoides) had spread internally.
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Ten Years Later and I’m Still Here – Ep. 18
It’s been ten years since I was diagnosed with Mycosis Fungoides—and no, there hasn’t been a miracle cure or a neat treatment roadmap. In this episode, I’m opening up about what a decade with a rare, chronic illness really looks like. From the highs of hope with light therapy and interferon to the frustrating plateaus…
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I’ve Joined the Board of Directors of the Cutaneous Lymphoma Foundation – Ep. 17
‘ve joined the Board of Directors for the Cutaneous Lymphoma Foundation, and in this episode, I’m sharing why that matters and what it means for patients like us.
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