Fine, But Not Fine
Hosted by Kelly Paul, who has lived with Mycosis Fungoides (a rare form of Cutaneous T-Cell Lymphoma) since 2015, this podcast dives into the real-life struggles of managing an incurable condition while still trying to live a full, meaningful life.
Fine, But Not Fine is a podcast for anyone navigating the messy, frustrating, and often invisible challenges of rare diseases, chronic illness, and the healthcare system.
-
Why Advocacy Matters – Ep. 16
Advocacy isn’t just a buzzword. It’s a lifeline for those of us living with rare diseases and chronic illness. I talk about how real change doesn’t only come from big moments on Capitol Hill, it starts in the everyday: telling your story, joining forces with patient groups, challenging broken systems.
-
What is a Specialty Pharmacy? – Ep. 15
Ever wonder why your medication has to come from one specific place, arrives with tons of instructions, or can’t be picked up at your local pharmacy? In this episode, I break down what a specialty pharmacy is, why they matter for rare disease patients like me, and how frustrating they can be when you’re just…
-
Chronic Illness: Missing the Little Things – Ep. 14
In this episode, I’m not talking about insurance battles or medication side effects. I’m talking about something much smaller—a bath. Not a metaphorical bath. A real one. And how something that simple, that ordinary, can feel like everything when you’re living with a rare disease. Sometimes, it’s not the big victories that keep you going.…
-
Surviving the Mulligrubs: When You’re Just…Meh -Ep. 13
Ever feel off but can’t explain why? That weird, aimless funk has a name—the mulligrubs. In this episode, I break down why they hit, how to cope, and why sometimes the best move is mac and cheese and zero guilt.
- Resources
Join a Community That Gets It.
Join to connect, learn, and advocate for change.
LISTEN ON
PodBean | Amazon Music/Audible | iHeart Radio | Apple Podcasts | YouTube